The identification of supplements, medications, or protocols that demonstrate safety and usefulness in each individual patient of a certain age and sex, who exhibits a specific set of signs and symptoms, is certainly the most daunting part of this new practice of Pediatric Special Needs medicine.
This week, we received some great news about two of our patients with significant speech delay. Both have been has been getting treatment at The Child Development Center for ~18-24 months, experiencing significant speech apraxia that has been resolving only very slowly, in spite of the usual alternative protocols.
5 year-old Harry:
Hello Dr. Udell,
I met Billy’s mom, who also sees you. Also by chance, ironically she goes to the same speech therapy place as Harry. We started talking and she suggested I put Harry on a special diet. I have amazing news to report. I am not sure if it is coincidence, but I put Harry on a very strict Gluten free/Casein free/Soy free/Sugar free diet this past Saturday (6/4) and on 6/7 he started talking!!!! He is mostly repeating when I prompt him, most of the language is prompted and a lot of it is not completely clear, you can make out what he is saying though. Very similar to when a child first starts talking. He has said in excess of 70 new words in the past 2 days, not including words he is repeating!!!! I am so excited. I am not sure if you can review the supplements he is taking and let me know if you want me to change anything?? Do you want me to give more B12 shots?? He is currently taking them twice a week. Now that he is “talking” I am not sure if we should alter anything and wanted your opinion/advice. I am going to stop in shortly to pick up more glutathione so please let me know… His bowel movements are improving/changing as well. Please let me know what you think and I will bring him with me next week when I pick up more supplements and have him say “hi” to you…. literally!!!!
What a great response… honestly, it’s hard to know why, ’cause he didn’t show a significant IgG elevation against those foods..
It’s peculiar that for some, an SCD diet, GAPS diet, or other specific protocol, helps so much and others not at all.
I would just continue whatever you are doing right now without any changes.
Thanks so much for this information.
As long as you do not mind, I plan on using this as a blog – I will, of course, leave the names anonymous… but it would help so many others re-double their efforts.
Absolutely, and you can use our names, I don’t mind! (anonymity anyway). I am all for helping as many people as I can with whatever information necessary! I am so grateful to you Dr. Udell for all you have helped us with, I know its still a long road but I am more hopeful then ever. Let me know when you would like to see him next. I will see you sometime next week when I stop in to pick u more GSH…..
7 year-old Bobby:
Hello wanted to share great news. Bobby scored above average in Reading Comprehension and average in Math. He was promoted to first grade with no issues. Next year he will be in a Gen Ed classroom for 90 minutes, 5 days a week. He will also share specials and events with his Gen Ed class.
The teachers wrote, “In the past year, Bobby has come such a long way! Beyond our expectations. God is good. First grade, here we come!!!!”
We would like to thank Dr Udell and his wonderful caring team! We feel blessed!
What great news… Thanks to all your persistence and hard work, as well.
Really appreciate this update.
Autism recovery is a marathon, not a sprint. Parents are sometimes quite frustrated when they observe only a fraction of the improvement that they had expected, after only 3 or 4 visits over 6 or 9 months.
Those who discontinue modern alternative autism treatments, delivered by a trained, experienced medical practitioner, are relinquishing valuable time and opportunities for improvement.
The time that it takes to demonstrate improvement varies greatly from patient to patient. Often, the real miracles are the ones that percolate, not the occasional ‘great responder’ who gets better after one or two treatments (as seen on YouTube, of course).
When asked about which intervention generated the most improvement, many parents declare, “Im not sure what made my child better. It was a combination of the doctor and all of the various therapies.”
As long as medical intervention is affordable, safe, and effective, being part of the team that leads to improvement provides more than enough encouragement to continue the fight.
One of our patients wrote:
I just want to let you know that ‘Carrie’ will be entering Gen ed Kindergarten, no aides. We are so excited. Still have her on all her supplements. The last one we added, 5 htp, truly helped her moods.
She is a social butterfly. Imagination runs wild. Very smart, with an amazing memory. She can be stubborn, but extremely loving.
Thank you all for your love and dedication to our children.